My personal story about living with diabetes type 1

Posted on: 26.03.2018
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My name is Julie (or #hellomynameis Julie), I am 22 years old and I have been studying at the University for two years here in Odense, Denmark. I hope to graduate in Economics. Something that used feel like a certainty, now feels like a distant goal.

From student to patient

Recently I was told that I have diabetes type 1. I still struggle with the thought “I have diabetes”, just typing it makes me feel a little uncomfortable.

For a period, I was feeling tired and low on energy, but I thought it was just because of the amount of studying that I had to do. My parents got worried and sent me to see a GP. After a few visits and tests, there it was in black and white.

I have been feeling down since my diagnosis. My GP said that I have depression tendencies, probably due to my illness. Since all of this is new to me, I have been struggling with many things that I used to do without putting too much effort into it. Like eating whenever I felt like it or just eat what I wanted. I am also what some people might call a “difficult diabetic”, as my blood sugar is very often high and that makes me feel like I have been run over by a truck. This of course have had some impact on my studies.

I live with my roommate in the student dorm. She is learning more about my illness too, especially since we had a scare not that long ago. I almost ended up in a coma, as my friends did not know what to do and it was partly due to me still getting used to live with my illness and still struggling to remember to take my insulin shot AND eat.

I made the mistake of taking my insulin but forgot to eat so my sugar level went down, and my friend saw that I looked dizzy and slightly disoriented. She was about to give me insulin and that was not at all what I needed. I said, “I need sugar!”. Well, I am here so they manage to hear me out.

Living with diabetes: What can I achieve at the HIMSS Europe & Health 2.0 Conference?

What if I had not been able to utter those words? I had a scare but luckily my friends manage to help me.  

I wish that I can find some answers to my many questions and that is why I am really looking forward to attending the HIMSS Europe & Health 2.0 Conference. The workshop about “Empowering Patients and Citizens to Become CEOs of their Own Health” seems to be very appropriate to my new condition.

I hope that by attending the conference that I will be learning more about my illness. Maybe I will meet patients with similar journeys. I wish to gain a broader understanding of any helpful technology that might be able to help me improve my lifestyle, but that can also keep me motivated. Currently my great desire is to be able to live as normal of a life as possible so I can pursue my dream and finish my studies.

Thank you for listening and being part of my journey.

I hope to see you in Sitges :) 

Julie

Julie

Student with diabetes type 1

Odense University